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I am delighted to introduce you to attorney Bernard Krooks! Bernie's first, helpful (fantastic!) Autism Hangout submission is on how parents can best organize their estate to benefit their child with autism.



Bernie is a Certified Elder Law Attorney, and a member of a national elder law collective. He's also a member of the Special Needs Alliance. If you're not familiar with SNA, you should be! Here's a synopsis from their web site:

"The Special Needs Alliance is a national, non-profit organization committed to helping individuals with disabilities, their families, and the professionals who represent them. Our attorneys are some of the most credentialed public benefits and disability law attorneys in the country, many of whom are themselves parents and siblings of children with disabilities."

Here's his article:

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10 Tips on How Parents Who Have a Child with Autism Can Organize Their Estate
By: Bernard A. Krooks, Certified Elder Law Attorney

As a general rule, we should keep our estate planning documents in a safe place, which is readily accessible in the event they are needed. Parents of children with autism should also use a binder that contains all the information that future caregivers will need to carry on after the parents are gone. The information in the binder should be updated periodically to reflect changes in family circumstances, changes in the needs or desires of your child, and other issues that may assist your child’s future caregivers in carrying out their duties. The binder should generally contain separate folders in which you place the following:

1. Important legal papers for any children with special needs (for example, birth certificates, Social Security cards, and health-insurance cards).

2. The Letter of Intent, which parents should update at least once per year. The Letter of Intent is a nonbinding document that passes vital information about a person with a disability to future caregivers. It can include such things as your child’s sleeping preferences, eating habits, and many other important aspects of your child’s daily routine. While these items may be second nature to you, it is important not to take them for granted. After all, in many cases, the future caregivers assume their role in caring for your child without having actually lived in day in your shoes.

3. Written instructions spelling out any wishes regarding final arrangements (burial, cremation, or religious services or other ceremonies that may be desired).

4. Advance health care and financial directives such as powers of attorney, living wills, and health care proxies. By having these documents in a binder which can be accessed when needed you can save your family the heartache and expense of a guardianship proceeding should you become incapacitated.

5. Copies of any trusts- special needs trusts, living trusts, or insurance trusts- that may have been prepared. Remember, signed copies or originals may be needed to complete property transfers. Thus, you should also provide Information about where the original documents are kept.

6. A list of major assets and information about where they are kept (for example, a list of insurance policies, stocks, mutual funds, bank accounts, with policy and account numbers, and the names of any brokers, insurance agents, and investment advisors).

7. Guardianship papers for your special needs child, if any, and a list of advocacy organizations that may be helpful. Also, write down any personal reflections or thoughts you may have about these organizations.

8. The names of government agencies or case workers that you may have dealt with.

9. A list of government benefits your child may receive, as well as copies of any filled-out application forms. (These application forms will help the future caregivers the next time they apply for benefits on behalf of your child; especially since the caregivers may not understand the complexity of these applications.)

10. Other miscellaneous papers, such as tax returns filed for your child, information about housing options, schooling, and photographs of the family.

The estate planning process, especially when parents are planning for the future security of a child with special needs, can often seem overwhelming. But when you have taken the steps necessary to accomplish these objectives, it is a great sense of relief.
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Bernard A. Krooks, J.D., CPA, LL.M (in taxation), CELA, is a founding partner of the New York law firm Littman Krooks LLP. A nationally noted expert on special needs planning, he is also the incoming President of the Special Needs Alliance (www.specialneedsalliance.org), a national organization dedicated to assisting families with special needs planning and related issues.

Mr. Krooks may be reached at (212) 490-2020, or visit the firm’s website at www.littmankrooks.com.




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